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When he was 6, Kavi lost his older brother to I-Cell (#Mucolipidosis II), a terminal #raredisease. Read what happen… https://t.co/ipLZiA58E8-5 hours 52 min ago
RT @BioBall_MA: When it comes to fundraising, no one can beat @SanofiGenzyme team member @Heather87020356! She is on a roll! Thank… https://t.co/0iFNDINDqU-1 day 3 hours ago
After two of her three children were diagnosed with GM1 (GM1 gangliosidosis), Marilee Leishman became active with t… https://t.co/ZmjIyRZPwm-1 day 7 hours ago
Our #RareBloodDisorder’s Head of Global Public Affairs, Simone Azevedo, enjoyed connecting with @ApmpsVIDA's, Regin… https://t.co/XvOZzVUI7S-1 day 20 hours ago
@staceyvogl @SanofiUS Hi Stacey - I'd be happy to assist you. However, I have not received a PM from you. Please… https://t.co/uwgLzO4uVF-1 day 21 hours ago
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